Sunday, March 7, 2010


Jethro Storms Dole
February 26 via emergency c-sec
9lb 1oz, 22" long

Jethro was born with a congenital heart defect (CHD) known as Ebstein's Abnormality of the Tricuspid Valve, and Pulmonary Atresia. Ebstein's is a rare defect, only affecting 1 in every 210,000 babies. To make things even more difficult, Jethro was born with a severe form of it.

At this moment, I am writing from his room in the NICU where he was born. We are praying for stability as he is scheduled for surgery in the morning to begin the process of turning his heart into a 2 chamber organ instead of 4 chambered. Tomorrow will be the first of 3 surgeries performed over the next 3 years. It is openAlign Left heart, so carries a fair amount of risk, but without the surgery, his condition is incompatible with life ~ not something a Mama wants to hear concerning her child.

I have been fairly absent here, and hope to rectify that, but I honestly don't know when I'll be able to.

If you are interested in keeping up with Jethro and what's going on, you can check out our family blog, The Legend of Thousand Hills Farm , or, if you are on Facebook some friends/family have set up a group for him that you can join. It's Jethro Storms Dole.

We appreciate your prayers.